Workshop 3.5 – Cross-Border Healthcare / European Reference Networks – IT Challenges and Solutions
Wednesday, May 29th 2019, 13:30-15:00
The ERN Mission – Challenges and Opportunities for Rare Diseases (Introduction)
Ruth Ladenstein
St. Anna Kinderkrebsforschung
The Contribution of the European Commission: The European Platform on Rare Disease Registration
Simona Martin
Joint Research Centre – European Commission
The Contribution of the European Commission: CPMS
Caroline Paquier (tbc)
European Commission
The Contribution of the European Joint Programme on Rare Diseases: EJP-RD
Ana Rath
Director Orphanet, Inserm US14 – Orphanet
EUPID – European Patient Identity Management Services
Michael Nitzlnader
AIT Austrian Institute of Technology
Moderation
Ruth Ladenstein
St. Anna Kinderkrebsforschung