DHS 2.6 - eHealth 4 Rare Diseases
     
Replay recorded session (participants only)  
     
Moderator
FH-Prof. DI Dr. Stefan Sauermann
FH Technikum Wien, Studiengangsleitung Medical Engineering & eHealth
Rare diseases require a special approach to health data use. This session is dedicated to elucidate what a future European eHealth infrastructure should look like to incorporate the needs of the Rare Disease community. The many existing and parallel activities in Europe were accelerated by the need to address the COVID pandemic. This session will first introduce the state of things and then identify possible ways to connect the dots.
     
Speakers
Catherine Chronaki, MSc.
Secretary General HL7 Foundation,
President European Federation for Medical Informatics (EFMI)
Download presentation:
"Digital innovation in the long term management of rare diseases: HL7 standards as enabler"

Ronald Cornet, PhD
Amsterdam UMC - University of Amsterdam,
President of the Dutch Society for Health Care Informatics,
Chair of the GO-FAIR Executive Board,
Chair of Working Group 6 - International Informatics Association
Download presentation:
"Establishing a FAIR ecosystem for rare diseases"

Mag. Karl Kreiner
Senior Engineer, AIT Austrian Institute of Technology
"A virtual platform for facilitating research in the rare disease domain"